Rare Diseases / Undiagnosed Services in Nova Scotia
Rare diseases affect fewer than 1 in 2,000 people. With over 7,000 known rare diseases and many undiagnosed conditions, finding support and specialists can be particularly challenging.
Rare Diseases / Undiagnosed Organizations
Arthritis Society Canada - Nova Scotia
Dartmouth, NS
Nonprofit organization supporting individuals and families affected by rare conditions in Dartmouth, Nova Scotia. Provides advocacy, support groups, resources.
Cystic Fibrosis Canada, Scotia Chapter
Suite 101 Halifax, NS
Nonprofit organization supporting individuals and families affected by chronic in Suite 101 Halifax, Nova Scotia. Provides support services, resources.
Nova Scotia Health Authority Chronic Pain Services
Windsor, NS
Nonprofit organization supporting individuals and families affected by rare conditions in Windsor, Nova Scotia. Provides support services, resources.
Nova Scotia Health Authority Chronic Pain Services
Halifax, NS
Nonprofit organization supporting individuals and families affected by rare conditions in Halifax, Nova Scotia. Provides support services, resources.
Nova Scotia Health Authority Chronic Pain Services
Sydney, NS
Nonprofit organization supporting individuals and families affected by rare conditions in Sydney, Nova Scotia. Provides support services, resources.
Nova Scotia Health Authority Chronic Pain Services
Yarmouth, NS
Nonprofit organization supporting individuals and families affected by rare conditions in Yarmouth, Nova Scotia. Provides support services, resources.
Nova Scotia Health Authority Chronic Pain Services
Berwick, NS
Nonprofit organization supporting individuals and families affected by rare conditions in Berwick, Nova Scotia. Provides support services, resources.
Nova Scotia Health Authority Chronic Pain Services
Truro, NS
Nonprofit organization supporting individuals and families affected by rare conditions in Truro, Nova Scotia. Provides support services, resources.
Nova Scotia Health Authority Chronic Pain Services
New Glasgow, NS
Nonprofit organization supporting individuals and families affected by rare conditions in New Glasgow, Nova Scotia. Provides support services, resources.
Nova Scotia Health Authority Chronic Pain Services
Dartmouth, NS
Nonprofit organization supporting individuals and families affected by rare conditions in Dartmouth, Nova Scotia. Provides support services, resources.
Nova Scotia Rehabilitation and Arthritis Centre
Halifax, NS
Nonprofit organization supporting individuals and families affected by general disability and rare conditions in Halifax, Nova Scotia. Provides rehabilitation, therapy.
Nova Scotia Rehabilitation and Arthritis Centre @ QEII Health Sciences Centre
Halifax, NS
Nonprofit organization supporting individuals and families affected by general disability and rare conditions in Halifax, Nova Scotia. Provides rehabilitation, therapy.
Sickle Cell Disease Association of Atlantic Canada
Dartmouth, NS
Nonprofit organization supporting individuals and families affected by rare conditions in Dartmouth, Nova Scotia. Provides advocacy, support groups, resources.
Related Programs & Benefits
A new federal benefit providing $200/month for persons aged 18-64 with low income who have Disability Tax Credit approval. First month of eligibility was June 2025 with payments starting July 2025. Back payments available up to 24 months from application date. Most provinces have exempted the CDB from provincial benefit calculations, but Alberta claws back CDB from AISH recipients dollar-for-dollar.
A monthly taxable benefit for people who have contributed to the Canada Pension Plan and are unable to work due to a severe and prolonged disability. Includes a children's benefit of $301.77/month per child. Quebec residents apply through the Quebec Pension Plan (QPP) instead.
A federal autism strategy developed in collaboration with the autistic community, families, service providers, researchers, and provincial/territorial governments. AIDE Canada (Autism & Intellectual Disabilities Knowledge Exchange Network) is funded by the Public Health Agency of Canada as part of this strategy, providing online resources, an inventory of services, and 6 in-person locations across Canada.
A federal dental care plan administered through Sun Life, available to eligible Canadians including those with Disability Tax Credit qualification. Covers essential oral health services including preventive care, restorative services, and other dental treatments.
Up to $2,200/month for qualifying families caring for children with disabilities at home, primarily for respite services.
An ESDC-funded program where nonprofits provide one-on-one navigation support to help people with disabilities find and apply for benefits they are entitled to, including DTC, CDB, RDSP, CPP-D, and provincial benefits. Organizations are funded across all provinces and territories to provide free assistance.
A non-refundable tax credit for individuals with a severe and prolonged impairment in physical or mental functions. The DTC is the gateway to other federal benefits including the Canada Disability Benefit, RDSP, and Child Disability Benefit. Can transfer unused portion to a supporting family member for a refund of up to approximately $1,400.
Treatment for preschool children with autism. 15 hours/week for first 6 months, gradually reduced over following 6 months.
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