Sibling Support
Siblings of people with disabilities are often the most overlooked members of the family. Research shows they may experience feeling invisible, worry about the future, guilt for being angry or healthy, embarrassment (especially in adolescence), and premature maturity from taking on caregiving roles too young. They also develop remarkable strengths — empathy, resilience, and compassion.
Sibworkshops (formerly SibShops)
The gold standard for sibling support. Structured peer programs where siblings meet other siblings and realize they're not alone. Activities, games, and discussion — not therapy, just connection.
Other Sibling Resources
- SibNet / SibTeen — online communities for siblings of all ages
- Many disability camps offer sibling inclusion or sibling-specific sessions
- Books: "Views from Our Shoes" by Donald Meyer, "The Sibling Survival Guide" by Don Meyer and Emily Holl
- Books for younger children: "My Brother Charlie" (autism), "We'll Paint the Octopus Red" (Down syndrome)
Guidance for Parents
- Ask the other children how they're doing — then ask again and truly listen.
- Siblings need one-on-one time with each parent. Even 30 minutes a week makes a difference.
- Let siblings feel angry, jealous, or sad without guilt. All feelings are valid.
- Siblings can help, but they should not be made into full-time caregivers.
- Talk about the disability openly at home. Silence creates shame and confusion.
- Consider sibling-specific counselling for withdrawal, acting out, anxiety, or school problems.
- Plan for the future WITH siblings — discuss openly rather than assuming they'll take over care.
Ages to Watch
- Ages 3–6: Confusion about why a sibling gets more attention. Need simple explanations.
- Ages 7–12: Embarrassment in front of friends. May avoid bringing friends home. Need validation.
- Ages 13–17: Identity formation — wondering if they're defined by a sibling's disability. Need independence.
- Ages 18+: Worry about future caregiving responsibility. Guilt about leaving for college/career.
- Adult siblings often become primary caregivers when parents age. They need support, planning, and community.
More Family Support
Respite Care
Temporary relief for primary caregivers. Most provinces fund respite care — most families don't know.
Parent Support Programs
Connect with other parents who understand. Provincial networks, dad-specific support, and couples resources.
Equipment & Devices
Free lending libraries, provincial assistive device programs, and funding sources for equipment.
Camps & Recreation
Summer camps, adaptive sports, and year-round recreation programs across Canada.
Future Planning
Henson Trusts, wills, guardianship, Letter of Intent — planning for when caregivers can no longer provide care.
Companion & Befriending Programs
Volunteer-based programs that provide social connection and friendship for people with disabilities.